Hypertrichosis (Werewolf Syndrome): Causes, Treatments, and Types (2024)

Hypertrichosis (werewolf syndrome) causes excessive hair growth anywhere on a person’s body. It can affect both sexes but is extremely rare.

The abnormal hair growth may cover the face and body or in small patches. Hypertrichosis can appear at birth or develop over time.

Read on to learn about the various types of hypertrichosis, what may cause it, and how it’s treated.

There are several types of hypertrichosis:

  • Congenital hypertrichosis lanuginosa: It first appears as normal lanugo, the fine hair found on a baby, at birth. But instead of disappearing during subsequent weeks, the soft fine hair continues to grow in various places on the baby’s body.
  • Congenital hypertrichosis terminalis: Abnormal hair growth begins at birth and continues throughout a person’s life. Hair, usually long and thick, covers the person’s face and body.
  • Nevoid hypertrichosis: Excessive hair growth of any kind appears in a defined area. In few cases, more than one patch of hair is present.
  • Hirsutism: This form of hypertrichosis is limited to women. It results in dark, thick hair growing in places women normally don’t have hair, such as their face, chest, and back.
  • Acquired hypertrichosis: Unlike congenital hypertrichosis, the acquired form of the disease tends to develop later in life. As well, it results in two types of hair other than lanugo: vellus hair or terminal hair. Excess hair may grow in small patches or on all hair-growing areas of a person’s body.

As mentioned previously, hypertrichosis can occur at birth or develop later in life.

Hypertrichosis usually produces one of three types of hair:

  • Vellus: The follicles for these hairs are usually short (less than 1/13th of an inch long, according to the Indian Journal of Endocrinology and Metabolism). They may be located anywhere but the soles of your feet, backs of your ears, lips, and palms, or on scar tissue. Vellus may be pigmented or nonpigmented.
  • Lanugo: This type of hair is very soft and fine, like that on the body of a newborn baby. It usually has no pigment. Most babies lose lanugo within a few days or weeks after birth. If hypertrichosis is present, lanugo may remain unless treated and removed.
  • Terminal: The hair is long and thick, and usually very dark.

Women with hirsutism develop stiff, dark body hair in places such as their face, chest, and back.

Another common symptom of hypertrichosis is a problem with your gums or teeth. Some teeth may be missing, or your gums may be enlarged.

The causes of hypertrichosis aren’t well understood, though there is a form of the disease that tends to run in families.

Congenital hypertrichosis may be caused by reactivation of genes that cause hair growth. The genes that caused extensive hair growth in early man have “shut down” during the course of evolution. By a mistake that still has no known cause, these hair-growth genes “turn on” while a baby is still in the womb.

Acquired hypertrichosis may have several origins. When hair growth is everywhere or in random patches, possible causes include:

  • porphyria cutanea tarda, a condition in which your skin is especially sensitive to light
  • malnutrition
  • diet or an eating disorder like anorexia nervosa
  • cancer
  • certain drugs, such as androgenic steroids, the hair-growth drug minoxidil, and cyclosporine (Sandimmune)

Hypertrichosis occurring in specific places on your body can develop from:

  • lichen simplex, a chronic skin condition that leads to itchiness and repeated scratching of a patch of skin
  • temporary use of a plaster cast
  • increased vascularity, a bodybuilding strategy to develop prominent blood vessels near the surface of the skin

Hypertrichosis, regardless of type, is infrequent. Congenital hypertrichosis lanuginosa, for example, is extremely rare. Only about 50 cases of this kind of hypertrichosis have ever been documented, according to JAMA Dermatology. Hirsutism is much more common, affecting about 7 percent of the female population in the U.S.

Hypertrichosis has no cure, and you can’t do anything to prevent the congenital form of the disease. The risk of certain forms of acquired hypertrichosis may be lowered by avoiding certain medications, such as minoxidil.

Treating hypertrichosis involves the removal of hair through a variety of short-term methods. They include:

  • shaving
  • chemical epilation
  • waxing
  • plucking
  • hair bleaching

All of these methods are temporary solutions. They also run the risk of causing painful or uncomfortable skin irritation. And on some parts of your body, these treatments aren’t easily done.

Long-term treatments include electrolysis and laser surgery. Electrolysis is the destruction of individual hair follicles with small electrical charges. Laser surgery involves the application of a special laser light over several hairs at one time. Hair loss can often be permanent with these treatments, though you may need a few sessions to complete the job.

Read more: Excessive or unwanted hair in women »

Hypertrichosis (Werewolf Syndrome): Causes, Treatments, and Types (2024)

FAQs

How do you treat werewolf syndrome? ›

Hypertrichosis has no cure, and you can't do anything to prevent the congenital form of the disease. The risk of certain forms of acquired hypertrichosis may be lowered by avoiding certain medications, such as minoxidil. Treating hypertrichosis involves the removal of hair through a variety of short-term methods.

What triggers hypertrichosis? ›

Hypertrichosis can be either congenital, such as congenital hypertrichosis lanuginosa, congenital hypertrichosis terminalis, and naevoid hypertrichosis; or acquired due to malnutrition, malignancy, exposure to medications, and repetitive scratching, among other causes.

Can hypertrichosis be treated with laser? ›

Possible causes include the effect of inflammatory mediators and subtherapeutic thermal injury causing induction of the hair cycle. Treatment for paradoxical hypertrichosis is laser therapy of the affected area.

Does hypertrichosis get worse with age? ›

Terminal hair is usually thick, coarse, and long. It is often associated with hormones and is typically found on the face, armpits, and groin. Women with hirsutism will often develop terminal hair on the face, back, arms, and chest. The severity of hypertrichosis symptoms may increase or decrease with age.

Who is the little girl with werewolf syndrome? ›

Little Adik Missclyen, from Bintulu, has congenital generalised hypertrichosis, an extremely rare condition that causes her to grow excessive facial and upper body hair.

Is werewolf syndrome rare? ›

Because he has a rare health condition called "Werewolf syndrome". In this, a person's body has abnormal hair growth and resembles animal fur. Also known as hypertrichosis, werewolf syndrome has been seen in only 50 people since the Middle Ages.

What triggers a werewolf? ›

Triggers. Most werewolves have a trigger that makes them transform. For example: If a werewolves is in human form and it gets to hyper, it will transform. Other triggers are: getting to angry, getting hurt, getting too much adrenaline, or to protect something or someone.

Is hypertrichosis permanent? ›

While there is no cure for congenital hypertrichosis, the acquired version is normally treated by addressing the underlying cause. When hypertrichosis is acquired, there can be several different sources and once the source is identified, it can be treated, and in turn the hypertrichosis will be treated.

What hormones does hypertrichosis affect? ›

Pathophysiology of Hirsutism and Hypertrichosis

Hair growth depends on the balance between androgens (eg, testosterone, dehydroepiandrosterone sulfate [DHEAS], dihydrotestosterone [DHT]) and estrogens. Androgens promote thick, dark hair growth. Testosterone stimulates hair growth in the pubic area and underarms.

What is a interesting fact about werewolf syndrome? ›

Werewolf syndrome is medically known as hypertrichosis. It is a disorder that is characterized by excessive body hair. Typically the entire body with the exception of the palms of the hands and the soles of the feet are covered in dense hair, which can resemble fur.

Can werewolf syndrome be cured? ›

There is no cure for any congenital forms of hypertrichosis.

Can you get rid of hypertrichosis? ›

People can be born with the condition or develop it later in life due to a medical disorder or certain medications. There is no cure for the condition but depending on the cause, there are different ways to manage it. Addressing the underlying cause or changing medications is usually enough to resolve the hair growth.

Why am I suddenly growing chin hair? ›

Occasional chin hair can be caused by changing hormones, aging, and genetics. But if it's more than just a few hairs that are coarser than others, or there's a sudden increase in facial hair, it's time to see a doctor. The discovery of the odd hair on your chin is perfectly normal and usually not a cause for concern.

Do people with hypertrichosis shave? ›

The currently available treatment methods include cosmetic procedures (bleaching, trimming, shaving, plucking, waxing, chemical depilatories, and electrosurgical epilation), and hair removal using light sources and lasers.

Does electrolysis work on hypertrichosis? ›

Electrolysis satisfactorily removes hair from women and men with hypertrichosis, but women with hirsutism require concomitant hormonal management.

How to treat paradoxical hypertrichosis? ›

If you start to experience or have experienced paradoxical hypertrichosis all is not lost. It may seem counterintuitive but experts often recommend sticking to your course of laser treatments because the technology can eventually remedy it.

Top Articles
Latest Posts
Article information

Author: Kimberely Baumbach CPA

Last Updated:

Views: 6411

Rating: 4 / 5 (61 voted)

Reviews: 92% of readers found this page helpful

Author information

Name: Kimberely Baumbach CPA

Birthday: 1996-01-14

Address: 8381 Boyce Course, Imeldachester, ND 74681

Phone: +3571286597580

Job: Product Banking Analyst

Hobby: Cosplaying, Inline skating, Amateur radio, Baton twirling, Mountaineering, Flying, Archery

Introduction: My name is Kimberely Baumbach CPA, I am a gorgeous, bright, charming, encouraging, zealous, lively, good person who loves writing and wants to share my knowledge and understanding with you.